I know I’ve written about it before. But for those new on the blog, I would like to share that my youngest daughter has G6PD deficiency. This is a genetic and benign condition in which the red blood cells lack the protective G6PD enzyme. When a G6PD-deficient person ingests or comes into contact with prohibited food or chemicals, their red blood cells erupt. This will cause hemolysis, with an effect like jaundice, which can be dangerous if not treated.
Prohibited food and chemicals — triggers of hemolysis — are mainly legumes, soy,fava beans, ampalaya or bittergourd, blueberries, napthalene balls, and menthol, to name a few. We keep a copy of the Avoid List, or those that should not be given to a G6PDD, so that we ensure we give only what’s safe for her.
First time the news struck me, via newborn screening, I was heartbroken. But as I’ve researched and found a support group from fellow parents in the same boat as hubby and I are, I’ve learned to accept my daughter’s condition.
Then last night, my dad brought up the G6PDD subject. He was saying how kawawa or pitiful my G6PDD daughter was since she can’t eat some of the food her Ate can. He was saying — somehow berating me — that we should pray for a miracle so that the deficiency would go away. Or heal. Or whatever. Just be gone, perhaps.
I would have rebutted, although I know I would always be on the losing end. You know, parents. The traditional kind, LOL.
Anyways, I’m just going to put here what I wanted to say last night (but couldn’t, because it will just become a roundabout discussion).
Do we pray for our daughter? Yes we do. We lift them up to the Lord because I know there is a purpose for this, why she has this condition. And believe me, I thank God because, as my OB had said, it’s not all that bad. My daughter could have had far worse conditions, but as my OB said, G6PDD can be managed. And we are managing.
Do I pray for a miracle for the G6PDD to go away? To be honest, no. Because even if I did or do, IT WON’T GO AWAY. It’s not a tumor you can remove or shrink (sorry if I offended anyone). It’s a blood condition. G6PDD is there. She’ll have it throughout her lifetime.
Don’t get me wrong, I believe miracles can happen. But while it’s not happening for my kid yet, all I can do is manage. Learn to live with it. Because that’s how it is in the real world.
I don’t wait. I make my move to learn about the condition and how to deal with it. And teach my kid how to deal with it while the miracle ain’t happening yet. Because what are we supposed to do? Sit down? Mope?
No. We take action. And deal with it. That’s how the world rolls in real life, you know.
And you know what? If you were a stranger and saw my kid, you’d think she was any normal kid. So probably she’s still in the one- or two-word verbal stage at 2 years old. But hey, she’s very clever and crafty — maparaan — in a way that she knows how to get what she wants without help. And very vivacious, too.
You see, my daughter having G6PDD ain’t that bad a thing. In fact, it even made me want to learn to have a healthier life.
And seeing her lovely face, with eyes like mine, and hearing her voice, her footsteps every single day. That’s enough a miracle for me.